INFORMATION

FASD ONE

Fetal Alcohol Spectrum Disorder Ontario Network of Expertise (FASD ONE) is a group that works together to address issues related to Fetal Alcohol Spectrum Disorder (FASD) in the province.

Canada FASD Research Network (CanFASD)

This organization is a collaborative, interdisciplinary research network, with collaborators, researchers and partners across the nation. Their mission is to produce and maintain national, collaborative research designed for sharing with all Canadians, leading to prevention strategies and improved support services for people affected by Fetal Alcohol Spectrum Disorder.

They host two blogs:

FASDprevention

Perspectives on FASD Prevention

CanFASD Connect

Perspectives on FASD Intervention: Research, News and Current Events.

KnowFASD

This site summarizes common neurobehavioural difficulties that may appear throughout the lifespan of individuals with FASD and presents possible interventions.

Lutherwood (FASD Waterloo Region)

This site is intended to offer strategies, tips and community supports for families. Included are resources for educators and other professionals that can be used when supporting children and youth diagnosed under FASD.


TRAINING & EDUCATION

Halton FASD & Reach Out Centre for Kids (ROCK)

Comprehensive and practical training sessions led by experienced professionals. Daytime and evening sessions are offered several times a year. No cost to caregivers. Register through their website.

FASCETS Canada

Fetal Alcohol Spectrum Consultation Education and Training Services based on the Neurobehavioural Approach to FASD developed by Diane Malbin, MSW, founder of FASCETS in Portland, Oregon. There is a cost for training.

FASD Forever

Jeff Noble is the Founder and CEO of an organization that provides hope and education to people caring for someone living with Fetal Alcohol Spectrum Disorder (FASD) through online applications and in-person training sessions, demonstrations and consultations. His focus is FASD, but his expertise is building community through social media. Using an interactive, yet personal approach, Jeff delivers relevant, useful and need-to-know information to help and support front line workers, educators and caregivers of those living with FASD. There is a cost for training.


TOOLS

Do2Learn

Provides free pages with social skills and behavioral regulation activities and guidance, learning songs and games, communication cards, academic material, and transition guides for employment and life skills. In addition, we offer premier products including View2do, JobTIPS, FACELAND, books, and apps for purchase.


JUSTICE SYSTEM

Fetal Alcohol Spectrum Disorder & Justice

This site is designed for justice system professionals and others who want to understand more about FASD. It provides information and resources about Fetal Alcohol Spectrum Disorder (FASD), including background information, case law, legal resources and strategies for effective intervention.

David Boulding – Fetal Alcohol Consultant

David is a lawyer practicing in British Columbia and author of Mistakes I Have Made with FAS Clients. He has spoken domestically and internationally on the topic of fetal alcohol and the law to judges, lawyers, social workers, and probation officers.


BOOKS

Trying Differently Rather Than Harder: Fetal Alcohol Spectrum Disorders

Diane Malbin, MSW

Strategies Not Solutions

A booklet designed by The Edmonton and Area Fetal Alcohol Network.

Making Sense of the Madness: An FASD Survival Guide

Jeff Noble

Jeff thought he knew all about FASD… until he started parenting a teenager with it! Jeff and his partner, Tara had been front line staff for many years and both felt they had the tools and experience to successfully parent a special needs teen and still be able to manage their home, relationship, friends and day-to-day life. They were wrong. Through a ton of mishaps, wrong turns, failed attempts and the occasional win, Jeff and Tara were able to keep their heads above water until eventually discovering a few key principles that changed their lives. Making Sense of the Madness: An FASD Survival Guide will provide readers with key principles and ‘light bulb moments’ of discovery that will make positive changes in the way they understand, interpret and support individuals affected by an FASD.

FASD Sound Bites and Sanity Savers: A catalogue of collective wisdom and things that make you go ‘hmmm’

Jeff Noble

As an FASD caregiver, Jeff found himself confused a lot. Constant meetings, endless reports, medical jargon and long-winded appointments left Jeff overwhelmed, frustrated and feeling like he just couldn’t catch a break. After getting failing grades as an FASD caregiver, Jeff found himself back at school. Through the instructor’s use of soundbites and short snippets, Jeff was finally able to learn and understand FASD. The use of quick and catchy one-liners provided Jeff with easy to remember, simple, yet impactful reminders he needed as an FASD caregiver. More importantly, they kept him sane. In Jeff’s second book, FASD Soundbites and Sanity Savers he shares his favourite and most shared soundbites that have helped him to understand and even teach others about living and supporting someone with an FASD.

Fantastic Antone Succeeds: Experiences in Educating Children with Fetal Alcohol Syndrome

Judith Kleinfeld and Siobhan Wescott

A collection of inspiring stories from parents, teachers and professionals supporting individuals with FAS. It describes in concrete, specific ways how to educate children with FAS.

The Best I Can Be: Living with Fetal Alcohol Syndrome or Effects

Liz Kulp and Jodee Kulp

Mom’s Choice Recipient, Liz Kulp, as a young teen with Fetal Alcohol Effects challenged the world to peer inside her life and brain. Through her own writings the reader is taken on a life changing journey that will impact their thinking about how to help and understand children with brain damage due to Fetal Alcohol.

Our FAScinating Journey: Keys to Brain Potential Along the Path of Prenatal Brain Injury

Jodee Kulp

Our FAScinating Journey will introduce readers to another winding path in working with prenatally exposed children. Jodee illuminates this path with lights that shine the hope of possibilities for these special kids. On your journey through these pages you will:

  • Discover creative approaches in reaching and loving children with attachment issues.
  • Understand how alcohol affects the growing brains of children.
  • Become familiar with brain terminology.
  • Uncover ideas to help a child nutritionally.
  • Wade through school and behavior issues with tears, laughter and strategies you may not have tried.
  • Meet professionals who have helped the Kulp family help Liz grow.
  • Loose yourself in a myriad of ideas within the appendix.
  • Smile as you get to know Liz, a very real teen who is determined to be the best she can be in spite of FASD.

My Sibling Has a Fetal Alcohol Spectrum Disorder, Can I Catch It?

An informational booklet for siblings of children with FASD who may have difficulty understanding the diagnosis and its impacts.


RESOURCES FOR EDUCATORS

Provincial Outreach Program for Fetal Alcohol Spectrum Disorder (POPFASD)

POPFASD is a British Columbia Ministry of Education provincial resource program whose mandate is to increase educators’ capacity to meet the learning needs of students with Fetal Alcohol Spectrum Disorder (FASD).

FASD Guides for Educators

A variety of downloadable resources developed for educators.


GOVERNMENT

Public Health Agency of Canada

Provides information on FASD and its effects, current funded projects and funding opportunities, up-to-date resources, and links to other FASD websites.